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Clare Daly TD demands action on Narcolepsy from Taoiseach Enda Kenny

Clare Daly TD challenges Taoiseach after HSE and State Claims Agency seek to block Pandemrix Narcolepsy documents release. 4th April 2017 Full text of session below: Clare Daly TD: I want to talk to you today about a young man with narcolepsy, a life long debilitating disorder where he can and has fallen asleep without warning, [...]

By | April 5th, 2017|Media, News, Newspaper, Online, Public Posts, TV|0 Comments

Swine flu vaccine victims peg hopes to Commission recognition

After receiving the Pandemrix vaccine to prevent swine flu, nearly 1,700 people developed narcolepsy. Originally published in Politico By Carmen Paun 12/5/16, 9:22 PM CET ¦ Updated 12/5/16, 9:24 PM CET Almost 1,700 Europeans who have a rare sleep disorder linked to being vaccinated against swine flu looked to the European Commission on Monday for recognition [...]

By | December 6th, 2016|Media, News, Newspaper, Online, Public Posts|0 Comments

New report reviewing earlier Irish data into association between Pandemrix and Narcolepsy published

A new report has been published entitled "INVESTIGATION OF AN ASSOCIATION BETWEEN ONSET OF NARCOLEPSY AND VACCINATION WITH PANDEMIC INFLUENZA VACCINE, IRELAND APRIL 2009-DECEMBER 2010". This appears to be a thorough review of the original case data.  It reiterates what it describes as "the crude association between Pandemrix vaccination and narcolepsy as observed in Finland [...]

By | May 3rd, 2014|Media, Science|0 Comments

The Second Pandemrix Narcolepsy European Alliance Conference

SOUND is hosting The Second Pandemrix Narcolepsy European Alliance Conference on the 17th May 2014.  For details and registration, please click here.

By | May 3rd, 2014|Events, SOUND News|0 Comments