Online

//Online

Online Media coverage of SOUND, Narcolepsy, Pandemrix

Clare Daly TD demands action on Narcolepsy from Taoiseach Enda Kenny

Clare Daly TD challenges Taoiseach after HSE and State Claims Agency seek to block Pandemrix Narcolepsy documents release. 4th April 2017 Full text of session below: Clare Daly TD: I want to talk to you today about a young man with narcolepsy, a life long debilitating disorder where he can and has fallen asleep without warning, [...]

By | April 5th, 2017|Media, News, Newspaper, Online, Public Posts, TV|0 Comments

Delay In Funding For Vital Sleep Service Criticised

SOUND member Lauren Kavanagh and her father Larry spoke on RTE news last night about the impact of narcolepsy on their lives. Lauren is one of 80 people who developed narcolepsy as a result of the H1N1 Swine Flu vaccine Pandemrix. In the report by Fergal Bowers, they highlighted the need for funding for a sleep [...]

By | March 1st, 2017|Media, News, Online, Public Posts, SOUND News|0 Comments

Swine flu vaccine victims peg hopes to Commission recognition

After receiving the Pandemrix vaccine to prevent swine flu, nearly 1,700 people developed narcolepsy. Originally published in Politico By Carmen Paun 12/5/16, 9:22 PM CET ¦ Updated 12/5/16, 9:24 PM CET Almost 1,700 Europeans who have a rare sleep disorder linked to being vaccinated against swine flu looked to the European Commission on Monday for recognition [...]

By | December 6th, 2016|Media, News, Newspaper, Online, Public Posts|0 Comments

Leitrim TD Calls On Minister To Support Pandemrix Narcolepsy Sufferers

In the news this week the Leitrim Observer carried a short interview with Leitrim TD Martin Kenny who is calling on the Minister For Health to provide support for people who have developed narcolepsy as a result of the Pandemrix Swine Flu vaccine. He said: "I am calling on the minister to engage with representatives [...]

By | September 21st, 2016|Media, News, Newspaper, Online, Public Posts|0 Comments

SOUND Calls For Government Action On Narcolepsy Caused By Swine Flu Vaccine

There will be a hearing in the High Court next month in respect of a case for damages against the State and GlaxoSmithKline taken by a person who developed Narcolepsy and Cataplexy following the H1N1 swine flu vaccine, Pandemrix. The Government promoted vaccine programme to deal with the Swine Flu epidemic commenced in 2009. In [...]

By | June 17th, 2016|News, Newspaper, Online, Public Posts, Uncategorised|0 Comments

Waking up to sleep … Two peoples’ battle with narcolepsy

Please watch this fantastic video by Journalism and New Media masters student from Cork Institute of Technology, Ryan Price, featuring two of SOUND's members. https://youtu.be/0z8PgRco5zM Here is the complete Irish Examiner article:    

By | September 21st, 2015|Media, News, Newspaper, Online, Personal Stories, Public Posts|0 Comments