Media coverage about SOUND, Narcolepsy, Pandemrix etc
Clare Daly TD demands action on Narcolepsy from Taoiseach Enda Kenny
Clare Daly TD challenges Taoiseach after HSE and State Claims Agency seek to block Pandemrix Narcolepsy documents release. 4th April 2017 Full text of session below: Clare Daly TD: I want to talk to you today about a young man with narcolepsy, a life long debilitating disorder where he can and has fallen asleep without warning, [...]
Delay In Funding For Vital Sleep Service Criticised
SOUND member Lauren Kavanagh and her father Larry spoke on RTE news last night about the impact of narcolepsy on their lives. Lauren is one of 80 people who developed narcolepsy as a result of the H1N1 Swine Flu vaccine Pandemrix. In the report by Fergal Bowers, they highlighted the need for funding for a sleep [...]
Swine flu vaccine victims peg hopes to Commission recognition
After receiving the Pandemrix vaccine to prevent swine flu, nearly 1,700 people developed narcolepsy. Originally published in Politico By Carmen Paun 12/5/16, 9:22 PM CET ¦ Updated 12/5/16, 9:24 PM CET Almost 1,700 Europeans who have a rare sleep disorder linked to being vaccinated against swine flu looked to the European Commission on Monday for recognition [...]
Leitrim TD Calls On Minister To Support Pandemrix Narcolepsy Sufferers
In the news this week the Leitrim Observer carried a short interview with Leitrim TD Martin Kenny who is calling on the Minister For Health to provide support for people who have developed narcolepsy as a result of the Pandemrix Swine Flu vaccine. He said: "I am calling on the minister to engage with representatives [...]
SOUND Calls For Government Action On Narcolepsy Caused By Swine Flu Vaccine
There will be a hearing in the High Court next month in respect of a case for damages against the State and GlaxoSmithKline taken by a person who developed Narcolepsy and Cataplexy following the H1N1 swine flu vaccine, Pandemrix. The Government promoted vaccine programme to deal with the Swine Flu epidemic commenced in 2009. In [...]
New report reviewing earlier Irish data into association between Pandemrix and Narcolepsy published
A new report has been published entitled "INVESTIGATION OF AN ASSOCIATION BETWEEN ONSET OF NARCOLEPSY AND VACCINATION WITH PANDEMIC INFLUENZA VACCINE, IRELAND APRIL 2009-DECEMBER 2010". This appears to be a thorough review of the original case data. It reiterates what it describes as "the crude association between Pandemrix vaccination and narcolepsy as observed in Finland [...]