• SOUND is a support group for people who developed Narcolepsy as a result of the 2009/10 H1N1 Swine Flu vaccine, Pandemrix.
  • It's run by a very small team of volunteers who's family have been impacted.
  • What is Narcolepsy?
  • Narcolepsy comes in two forms, Type 1 with Cataplexy, and Type 2 without Cataplexy.
  • Cataplexy is a muscle tone weakness that is usually triggered by emotion.
  • Other common symptoms of Narcolepsy include...
  • Excessive Daytime Sleepiness
  • Very disturbed nighttime sleep, with vivid dreams know as hypnapompic and hypnagogic hallucinations
  • Sleep Paralysis
  • Automatic Behaviour
Comments Box SVG iconsUsed for the like, share, comment, and reaction icons

This message is only visible to admins:
Problem displaying Facebook posts.

Error: Error validating access token: The session has been invalidated because the user changed their password or Facebook has changed the session for security reasons.
Type: OAuthException
Code: 190
Subcode: 460

What should I do if I think I've got Narcolepsy?

Go to your GP - there are many other illnesses that can cause tiredness

Talk to your GP about getting a referral to a sleep clinic

The sleep consultant will ask you questions which will help determine whether you have a sleep condition

If they believe you have a sleep condition, you will be sent for an overnight sleep test

If you are diagnosed with Narcolepsy and the consultant attributes it to Pandemrix, contact SOUND

If you get diagnosed with Narcolepsy, but there is no association with Pandemrix, reach out to our good friends at Narcolepsy Ireland